NORD and ten patient organizations submit comments in support of Connecticut’s Section 1115 waiver application
Published: May 13, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and ten patient organizations submit comments in support of Connecticut’s Section 1115 waiver application
Published: May 13, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD and 17 patient advocacy organizations submit comments to CMS on Oregon’s proposed Section 1115 waiver
Published: Apr 13, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD comments to HHS regarding Oregon’s proposed Medicaid 1115 waiver renewal and the importance of accelerated approval treatments
Published: Apr 13, 2022
Tagged in: FDA’s Accelerated Approval Pathway, Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD and 11 patient advocacy organizations submit comments to CMS regarding New Jersey’s Medicaid 1115 Waiver renewal
Published: Apr 9, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD and 19 patient organizations thank the Centers for Medicare and Medicaid Services for the agency’s recent decision to remove a critical financial barrier to Medicaid coverage by rejecting and phasing out premiums in Section 1115 waivers
Published: Feb 14, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD submits comments to the state of Oregon on the rare disease impact of proposals included in the draft 1115 Demonstration Waiver for the Oregon Health Plan.
Published: Jan 6, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers