NORD and 75 organizations urge Congress to support step therapy reform
Published: May 24, 2022
Tagged in: Access to Innovative Medicines and Therapies
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 75 organizations urge Congress to support step therapy reform
Published: May 24, 2022
Tagged in: Access to Innovative Medicines and Therapies
NORD drafts comments on Senate Health, Education, Labor and Pensions committee’s discussion on FDA Safety and Landmark Advancements Act
Published: May 22, 2022
Tagged in: FDA’s Accelerated Approval Pathway, Expanded Access, Orphan Drug Act
NORD and 23 patient organizations ask Congressional leadership to address the Medicaid coverage gap and make enhanced APTCs permanent through budget reconciliation
Published: May 20, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
NORD joins Research!America and other health care organizations in urging Congress to sustain federal funding for medical and public health research in the FY23 omnibus appropriations bill
Published: May 16, 2022
Tagged in: Appropriations
NORD and 13 patient organizations submit a letter in support of Alaska’s 1332 reinsurance waiver demonstration
Published: May 13, 2022
Tagged in: Access to Affordable, Adequate Coverage, Section 1332 Waivers
NORD and ten patient organizations submit comments in support of Connecticut’s Section 1115 waiver application
Published: May 13, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers