NORD and 14 other patient organizations send a letter to Governor Polis urging him to sign SB 186 into law, legislation to establish a CO Rare Disease Advisory Council
Published: May 12, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 14 other patient organizations send a letter to Governor Polis urging him to sign SB 186 into law, legislation to establish a CO Rare Disease Advisory Council
Published: May 12, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD submits a letter of support to the CT Speaker of the House in support of House Bill 5260 to establish a Rare Disease Advisory Council
Published: Apr 28, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD submits written testimony to the CO Senate Committee on Health & Human Services Committee in support of Senate Bill 186 to establish a Rare Disease Advisory Council
Published: Apr 25, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD and 14 other patient organizations submit a letter to the ME Appropriations & Financial Affairs Committee in support of LD 972 to establish a Rare Disease Advisory Council
Published: Mar 22, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD submits written testimony to the CT Public Health Committee in support of House Bill 5260 to establish a Rare Disease Advisory Council
Published: Mar 10, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD and 16 other patient organizations submit a letter to Governor Polis to support Senator Ginal’s draft legislation to create a Rare Disease Advisory Council
Published: Mar 3, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)