Scroll
To Top
About
News
Events
Contact
PODCAST
Store
donate
Advanced Search
Menu
for
Patients and Families
Information & Resources
Rare Disease Information
Rare Disease Video Library
Patient and Caregiver Resource Center
Information on Clinical Trials and Research Studies
Gene Therapy
Rare Disease Centers of Excellence
COVID-19 Resources
Help to Access Medications
Patient Assistance Programs
Other Financial Assistance
Connect with Others
Find a Patient Organization
Rare Disease Day
®
Patient Stories
Take Action
Attend Events
Advocate
Support
Close
for
Patient Organizations
Join Membership Network
Value of Membership
Membership Criteria
Apply for Membership
Nonprofit
Resources
Membership Benefits
Membership Resources
RareLaunch
®
Webinar Series
Diversity, Equity & Inclusion
Other Ways to Partner
Grow your organization
Patient Registries
Advocacy
Rare Disease Day®
RDCA-DAP
®
Membership Profiles
About our Members
Member List
Rare Cancer Coalition
™
Close
for
Clinicians and Researchers
Resources
Resources for Medical Professionals
Rare Disease Information
Resources for your Patients
Continuing Medical Education
Research Opportunities
Research Grant Program
Requests for Proposals
Research Grant Recipients
Connect
Lend Your Expertise
Rare Disease Day
®
Close
NORD
Rare Disease Advocacy
NORD’s Policy in Action
Issue Overviews
NORD on the Issues
NORD State Report Card
National Partnerships
Take Action Locally
Join the Rare Action Network
®
Project RDAC
Contact Your Representatives
Take Action
RareInsights
®
RareInsights
®
5 Myths About Orphan Drugs and the Orphan Drug Act
Close
Get Involved
Donate Now
Give
Ways to Give
Donate to Research
NORD
®
Store
Educate
Educational Initiatives
Raise Awareness
Identify Rare Disease Experts
Join
Participate in Events
Become a Member
Rare Cancer Coalition
™
Employment Opportunities
Corporate Council
About the Corporate Council
Current Members
Council Code of Conduct
Join the Council
Close
Search Results for:
C
0-9
•
A
•
B
•
C
•
D
•
E
•
F
•
G
•
H
•
I
•
J
•
K
•
L
•
M
•
N
•
O
•
P
•
Q
•
R
•
S
•
T
•
U
•
V
•
W
•
X
•
Y
•
Z
*
CACNA1A Foundation
*
CADASIL-Together We Have Hope
*
CAH Support Group
*
Camp Twin Lakes
*
Campaign Urging Research for Eosinophilic Disease (CURED)
*
Campbell Burns Metabolic Trust
*
Canadian Addison Society
*
Canadian Angelman Syndrome Society
*
Canadian Association for Community Living
*
Canadian Association of Pompe
*
Canadian Cancer Society
*
Canadian Celiac Association
*
Canadian CMTC Foundation
*
Canadian Cystic Fibrosis Foundation
*
Canadian Diabetes Association
*
Canadian Fanconi Anemia Research Fund
*
Canadian Hearing Society
*
Canadian Hemochromatosis Society
*
Canadian Hemophilia Society
*
Canadian Hepatopulmonary Syndrome Program
*
Canadian Immunodeficiencies Patient Organization
*
Canadian Liver Foundation
*
Canadian Lymphedema Framework
*
Canadian Organization for Rare Disorders
*
Canadian Osteogenesis Imperfecta Society
*
Canadian PBC Society
*
Canadian Reflex Sympathetic Dystrophy Network
*
Canadian Society for Mucopolysaccharide and Related Diseases, Inc.
*
Canavan Foundation
*
Canavan Research Foundation
*
Canavan Research Illinois
*
Cancer Care, Inc.
*
Cancer Hope Network
*
Cancer Legal Resource Center
*
Cancer Research UK
*
Cancer Support Community
*
Cancer.Net
*
Canine Companions for Independence
*
Carcinoid Cancer Foundation
*
Cardio-Facio-Cutaneous International (CFC)
*
Cardiomyopathy Association
*
Caregiver Action Network
*
CARES Foundation, Inc.
*
Carol Ann Foundation
*
Carroll Center for the Blind
*
Carter Centers for Brain Research in Holoprosencephaly and Related Malformations
*
Castleman Disease Collaborative Network
*
Cat Eye Syndrome International
*
Catastrophic Illness in Children Relief Fund Commission
*
Cauda Equina Foundation, Inc.
*
CCHS Family Network (Congenital Central Hypoventilation Syndrome)
*
CDG Canada
*
CDG Care
*
CDH International
*
Cedars-Sinai Medical Genetics Institute
*
Center for Assistive Technology
*
Center for Assistive Technology and Environmental Access
*
Center For Disfigurement
*
Center for Hope
*
Center for Housing and New Community Economics (CHANCE)
*
Center for Information and Study on Clinical Research Participation
*
Center for International Blood and Marrow Transplant Research
*
Center For Loss In Multiple Birth, Inc.
*
Center for Medical Genetics
*
Center for Narcolepsy, Sleep and Health Research
*
Center for Peripheral Neuropathy
*
Center for Persons with Disabilities
*
Center for Research on Women with Disabilities
*
Center for Sickle Cell Disease
*
Center for Universal Design
*
Centers for Disease Control and Prevention
*
CenterWatch, Inc.
*
Central Brain Tumor Registry of the United States
*
Centre for Genetics Education
*
CGD Society
*
CHAMP1 Research Foundation
*
Charcot-Marie-Tooth Association
*
CHARGE Family Support Group
*
CHARGE Syndrome Foundation, Inc.
*
Charlotte & Gwenyth Gray Foundation to Cure Batten Disease
*
Chemical Injury Information Network
*
Cheyanna’s Champions 4 Children
*
Child and Youth Care
*
Child Brain Injury Trust
*
Child Growth Foundation
*
Child Neurology Foundation
*
Childhood Cancer Association, Inc.
*
Childhood Cancer Canada Foundation
*
Childhood Eye Cancer Trust
*
Childhood Liver Disease Research and Education Network
*
Children with Spinal Muscular Atrophy, Ukraine – Kharkiv Charitable Foundation
*
Children’s Brain Diseases Foundation
*
Children’s Brain Tumor Foundation
*
Children’s Brittle Bone Foundation
*
Children’s Cancer & Blood Foundation
*
Children’s Cardiomyopathy Foundation
*
Children’s Fund for Glycogen Storage Disease Research, Inc.
*
Children’s Gaucher Research Fund
*
Children’s Glaucoma Foundation
*
Children’s Heart Society
*
Children’s Hospice International
*
Children’s Hospital of Philadelphia Neurofibromatosis Program
*
Children’s Interstitial Lung Disease Foundation
*
Children’s Leukemia Research Association
*
Children’s Liver Association for Support Services (C.L.A.S.S.)
*
Children’s Liver Disease Foundation
*
Children’s Mitochondrial Disease Network
*
Children’s National Medical Center
*
Children’s Neurobiological Solutions Foundation
*
Children’s Organ Transplant Association, Inc.
*
Children’s Wish Foundation International, Inc.
*
Children’s Craniofacial Association
*
Children’s PKU Network
*
Children’s Tumor Foundation
*
Chloe’s Fight Rare Disease Foundation
*
Cholangiocarcinoma Foundation
*
Chondrosarcoma Foundation, Inc.
*
Chordoma Foundation
*
Choroideremia Research Foundation, Inc.
*
Chris CJ Johnson Foundation Inc.
*
Christopher & Dana Reeve Foundation
*
Chromosome 18 Registry & Research Society
*
Chromosome 22 Central
*
Chromosome 9pminus Network
*
Chromosome Disorder Outreach, Inc.
*
Chronic Granulomatous Disease Association, Inc.
*
Chronic Granulomatous Disease Registry
*
Chronic Illness Coalition
*
Chronic Recurrent Multifocal Osteomyelitis Foundation (CRMO)
*
Churg Strauss Syndrome Association
*
CID – Central Institute for the Deaf
*
Cincinnati Center for Development Disorders
*
Cincinnati Center for Eosinophilic Disorders
*
Circadian Sleep Disorders Network
*
CJ Foundation for SIDS, Inc.
*
CJD Aware!
*
CJD Voice
*
Claire Altman Heine Foundation, Inc.
*
Clear Cell Sarcoma Foundation
*
Clearinghouse on Disability Information
*
Cleft Lip and Palate Association
*
Cleft Lip and Palate Foundation of Smiles
*
Clinical Genetics Program, Children’s Hospital Boston
*
CLOVES Syndrome Community
*
Cluster Headache Support Group, Inc.
*
Clusterbusters, Inc.
*
CMT Research Foundation (CMTRF)
*
CMT United Kingdom
*
CMTC Alliance
*
CMTC-OVM Cutis Marmorata Telangiectatica
*
Coalition to Cure Calpain 3
*
Cobalamin Network
*
Cochrane Collaboration
*
Cochrane Cystic Fibrosis and Genetic Disorders Group
*
Coeliac Society of Australia Inc.
*
Coffin-Lowry Syndrome Foundation
*
Cogan’s Contact Network
*
Cohen Syndrome Association
*
Cold Agglutinin Disease Foundation
*
Comer Children’s Hospital – University of Chicago (Neurofibromatosis Clinic)
*
Community United for Research and Education of Ocular Melanoma
*
Compassion & Choices
*
Compassionate Friends – Supporting Family After A Child Dies
*
Congenital Adrenal Hyperplasia Education and Support Network
*
Congenital Adrenal Hyperplasia Support Group
*
Congenital CMV Disease Research Clinic & Registry
*
Congenital Hyperinsulinism International
*
Connecting Families Urea Cycle Disorders Foundation
*
Conquer Chiari
*
Conquering Gyrate Atrophy
*
Consortium for Outcome Measures and Biomarkers for Neurodevelopmental Disorders
*
Consortium of Multiple Sclerosis Centers
*
Contact A Family
*
CONVERSATIONS! The International Ovarian Cancer Connection
*
Cook for Love, Inc.
*
Cooley’s Anemia Foundation, Inc.
*
COPA Syndrome Foundation
*
CORE
*
Cornea Research Foundation of America
*
Corneal Dystrophy Foundation
*
Cornelia de Lange Syndrome Foundation, Inc.
*
Cortical Foundation
*
Costello Syndrome Family Network
*
Council for Exceptional Children
*
Council for Responsible Genetics
*
Courage Center
*
Craniofacial Clinic at University of Virginia
*
Craniofacial Foundation of America
*
Craniofacial Pain Center
*
Creutzfeldt-Jakob Disease Foundation, Inc.
*
Cri Du Chat Syndrome Support Group
*
Crigler-Najjar Association/King’s Way Foundation
*
Crisis Clinic (Helping Lives On The Line)
*
Crohn’s and Colitis Foundation of America
*
Crohn’s and Colitis Foundation of Canada
*
Crouzon Support Network, A Program of AmeriFace
*
Cruse Bereavement Care
*
CSNK2A1 Foundation
*
Cure Alveolar Soft Part Sarcoma International
*
Cure AP-4
*
Cure CMD (Congenital Muscular Dystrophy)
*
Cure HHT Foundation
*
Cure JM Foundation
*
Cure Mito
*
Cure Sanfilippo Foundation
*
Cure SMA
*
Cure SRD5A3
*
Cure VCP Disease, Inc.
*
CURE: Citizens United for Research in Epilepsy
*
Cure2Children Foundation
*
cureCADASIL
*
CureDuchenne
*
CureGRIN Foundation
*
CurePSP, Inc.
*
CureSearch for Children’s Cancer
*
Curing Retinal Blindness Foundation
*
Cushing’s Support and Research Foundation, Inc.
*
Cutaneous Lymphoma Foundation
*
Cutis Laxa Internationale
*
Cyclic Vomiting Syndrome Association
*
Cystic Fibrosis Foundation
*
Cystic Fibrosis Research, Inc.
*
Cystic Fibrosis Trust
*
Cystic Fibrosis Worldwide
*
Cystic Hygroma and Lymphangioma Support Group
*
Cystinosis Foundation UK
*
Cystinosis Foundation, Inc.
*
Cystinosis Research Foundation
*
Cystinosis Research Network, Inc.