NORD submits comments in response to NIH Request for Information: Developing Consent Language for Future Use of Data and Biospecimens
Published: Sep 29, 2021
Tagged in: Research, Newborn Screening
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD submits comments in response to NIH Request for Information: Developing Consent Language for Future Use of Data and Biospecimens
Published: Sep 29, 2021
Tagged in: Research, Newborn Screening
NORD and 86 other organizations oppose the Senate including changes to the Orphan Drug Tax Credit in the Build Back Better Act
Published: Sep 21, 2021
Tagged in: Research, Access to Innovative Medicines and Therapies, Advancing Rare Disease Research and Regulatory Science, Orphan Drug Act, Orphan Drug Tax Credit
NORD and 86 other organizations ask for the removal of provisions related to the Orphan Drug Tax Credit in the House version of the Build Back Better Act
Published: Sep 21, 2021
Tagged in: Research, Access to Innovative Medicines and Therapies, Advancing Rare Disease Research and Regulatory Science, Orphan Drug Act, Orphan Drug Tax Credit
NORD Joins with Research!America and Over 200 other Organizations to Support the Research Investment to Spark the Economy (RISE) Act
Published: Mar 24, 2021
Tagged in: Research, Ensuring Adequate Funding for NIH, Advancing Rare Disease Research and Regulatory Science
NORD Testimony on Missouri House Bill 995 to Special Committee on Government Oversight
Published: Feb 23, 2021
Tagged in: Research