NORD and five other patient organizations issue one-pager on the importance of biomarker testing and precision medicine
Published: Apr 27, 2022
Tagged in: Genetic Testing, Access to Diagnostics
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and five other patient organizations issue one-pager on the importance of biomarker testing and precision medicine
Published: Apr 27, 2022
Tagged in: Genetic Testing, Access to Diagnostics
NORD and 29 patient organizations submit a letter of support for expanding access to biomarker testing in Ohio
Published: Mar 14, 2022
Tagged in: Genetic Testing, Access to Diagnostics
NORD and coalition partners send letter to Congressional leaders asking that they increase funding for CDC and HRSA newborn screening programs
Published: Jan 14, 2022
Tagged in: Newborn Screening, Access to Diagnostics
NORD Submits Comments to Reps. DeGette and Upton on 21st Century Cures 2.0 Discussion Draft
Published: Jul 26, 2021
Tagged in: Access to Affordable, Adequate Coverage, Access to Affordable Medicines, Access to Diagnostics, Access to Innovative Medicines and Therapies, Advancing Rare Disease Research and Regulatory Science, COVID-19
Coalition statement expressing appreciation over the introduction of the Newborn Screening Saves Lives Reauthorization Act in the Senate
Published: Jul 18, 2019
Tagged in: Newborn Screening, Access to Diagnostics
NORD letter to Texas Governor Greg Abbott in support of SB 747 and SB 748, legislation pertaining to newborn screening
Published: Jun 3, 2019
Tagged in: Newborn Screening, Access to Diagnostics