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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Policy Statements

NORD and 88 patient organizations send letter to Congressional leaders urging them to improve clinical trial diversity as part of PDUFA reauthorization

Published: May 11, 2022
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NORD and 90 organizations representing patients with rare diseases call on HHS to strengthen and improve the Accelerated Approval pathway

Published: Apr 4, 2022
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NORD and 90 organizations representing patients with rare diseases call on Congress to strengthen the Accelerated Approval pathway as part of PDUFA reauthorization

Published: Apr 4, 2022
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