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PRODID:-//NORD (National Organization for Rare Disorders) - ECPv5.15.0//NONSGML v1.0//EN
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X-WR-CALNAME:NORD (National Organization for Rare Disorders)
X-ORIGINAL-URL:https://rarediseases.org
X-WR-CALDESC:Events for NORD (National Organization for Rare Disorders)
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20220313T070000
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DTSTART:20221106T060000
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DTSTART;TZID=America/New_York:20220429T140000
DTEND;TZID=America/New_York:20220429T153000
DTSTAMP:20220526T054219
CREATED:20220401T183035Z
LAST-MODIFIED:20220401T183035Z
UID:84471-1651240800-1651246200@rarediseases.org
SUMMARY:SRNA Online Support Group Meeting
DESCRIPTION:Join the Siegel Rare Neuroimmune Association for an online support group meeting hosted by Kate and Julie\, the Arizona support group leaders on 4/29! Anyone is welcome\, no matter where you are located. If you are an individual diagnosed or a caregiver for someone with ADEM\, AFM\, MOGAD\, NMOSD\, ON\, or TM\, you are invited to join the event. This month\, everyone will be learning about adaptive sports\, with two guest speakers to share the topic. The event will be joined by SRNA community member\, Lincoln Jamison and Ability360’s Gus Lazear. Come connect with others and discuss what it’s like living with a rare neuroimmune disorder. Ask questions\, share your stories\, or just listen – everyone is welcome. Register here: https://wearesrna.org/event/online-support-group-meeting-04-29-2022/
URL:https://rarediseases.org/event/srna-online-support-group-meeting/
ORGANIZER;CN="Siegel%20Rare%20Neuroimmune%20Association":MAILTO:ckrishnan@wearesrna.org
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